Courtney and Kelsey- always fighting each other for the daily "W".
Fragile X gets some press in the mainstream media:
The Never Empty Nest - Children with Fragile X Syndrome - Good Housekeeping
I once asked her what advice she would give a mom who had just found out that her child had been diagnosed with Fragile X. "I would tell her that you have a child who will never hate, argue, or disappoint you, and whose love is unconditional," she replied. "At night, when we tuck the boys in, you see how much love they have in them. Matt, at his greatest comfort level when you lie down with him, confirms the plans for the next day, then tells you that he loves you and to get out. Sean lies in his bed, eyes closed but not really asleep, with no pillows — a Sean rule — and you kiss him good night and tell him you love him. Without opening his eyes, he smiles. That's what matters."
Great site very informative I enjoyed it thank you…cheers Peter
Posted by: peter | Tuesday, July 05, 2011 at 12:07 AM